Wisdom From a Chair

Thirty Years of Quadriplegia    

The Memoirs of Andrew I. Batavia

   Layout 1

 

 

“It’s the story of a hero.” — Senator John McCain

 

Twelve years after his death, the family of Andrew (Drew) I. Batavia discovered his unfinished memoirs, with instructions for his wife or brother to complete them. In these memoirs, Drew shares the wisdom he acquired while living with a high-level spinal cord injury in a wheelchair, describing a life transformed from a quiet, conforming teenager to a Don Quixote of the disability community. But this is not just the story of a remarkable person who fought for the civil rights of people with disabilities. His memoirs hold a universal message about our human capacity to achieve the extraordinary, the enormous capability to survive, flourish, and succeed in the world, if we can fully exploit what we already possess within ourselves. Conceivably, each one of us can emerge as a Don Quixote. Drew’s memoirs are published during the twenty-fifth anniversary year of the Americans with Disabilities Act.

 

Drew’s Work Is As Relevant Today As It Was When He Was Alive: Civil Rights

 

American Disabilities Act Regulations : Equal opportunity in employment; Equal access to public places

The Right-to-Die Debate / Physician-assisted dying – Personal control over life and death decisions

Universal Healthcare -Equal access to healthcare

Independent Living  – A National Personal Assistance Program

The Future of the Two Party System -Fair and equal representation

 

From Drew’s Preface

I believe the key to happiness is to find a good mission in life, to make it your life’s work, to take that work very seriously, and not to take yourself seriously at all.

My mission in this world is to try to ensure that all people, including people with disabilities, have greater choices in and control over their lives. I believe that achieving this mission will make the world a slightly better place than it was before I got here.

 

Drew signed his name using a pen that he held in his mouth (later he made his signature into a stamp)

 

 

From Chapter 3

“If your mother is anything like my mother, you have heard several thousand times in your life that you should not do any of a variety of risky things, ‘or you will break your neck!’ It turns out that this is pretty good advice. Breaking your neck is not nearly as fun as it sounds.”

 

Podcast: Essay

A Podcast of Drew’s paper, “Of  Wheelchairs and Managed Care” can be found at this external link at Health Affairs

http://www.healthaffairs.org/podcasts/of-wheelchairs-and-managed-care-full-essay/

 

Bios

MD  R 300

 

Andrew I. Batavia (1957-2003), JD, MS, an internationally known disability activist, professor at Florida International University, and a person with high-level quadriplegia (paralyzed from the shoulders down), received his law education at Harvard University and health services research training at Stanford University. While a White House Fellow and special assistant to US Attorney General Dick Thornburgh, he wrote regulations for the Americans with Disabilities Act of 1990. Remarkably, Drew “pecked out” these regulations using a mouth stick — modest accommodations leading to historic output.

 

Mitchell Batavia, PT, MA, PhD, is an associate professor and chair of the Department of Physical Therapy at the Steinhardt School of Culture, Education, and Human Development at New York University. He was Andrew’s brother and lives in the Bronx with his wife, Evgenia, and son, Michael Andrew

 

 

11 ADA sign 300 final

The Signing of the Regulations of the Americans with Disabilities Act of 1990 at the Department of Justice

 

Video Clip: US Department of Justice ADA Celebration

In this video clip, Drew open’s the 1991 ceremony at the DOJ during  the first anniversary of the Americans with Disabilities Act of 1990.

http://digital.library.pitt.edu/cgi-bin/t/thornburgh/dtVideoPlayer?id=dtv182

 (note: video runs on PCs, but possibly not on Pads and smartphones)

 

 

 

Don Quixote in a wheelchair: a legendary warrior for the disabled – News Posting from FIU  – May 2016

Don Quixote in a wheelchair: Remembering a legendary warrior for the disabled

Harvard Law Today

HLS Authors: Selected Alumni Books Spring ’16

 

Table of Contents 

FOREWORDS: Former US Attorney General Dick Thornburgh; Senator John McCain
PREFACE
HELPING TO COMPLETE DREW’S MEMOIRS
ACKNOWLEDGMENTS
PART 1. THE FULL EXPERIENCE
CHAPTER 1. NO LOG CABINS IN BROOKLYN (OR YONKERS)
CHAPTER 2. PREPARATION AND DISASTER
CHAPTER 3. MY ACUTE RECOVERY
CHAPTER 4. MY REHABILITATION AT RUSK
CHAPTER 5. DEFINITIVE PROOF OF GOD
CHAPTER 6. YOU CAN GO HOME AGAIN, AT LEAST FOR A YEAR
CHAPTER 7. GO WEST, YOUNG MAN, TO BEZERKELEY
CHAPTER 8. THEN SOUTH, TO RIVERSIDE (OF ALL PLACES)
CHAPTER 9. THEN EAST, TO HARVARD LAW
CHAPTER 10. BACK WEST TO THE FARM: STANFORD MED
CHAPTER 11. A GOVERNMENT PAYCHECK: ACHIEVING BRAIN DEATH
CHAPTER 12. THE PRIVATE SECTOR
CHAPTER 13. WHITE HOUSE FELLOWSHIP
CHAPTER 14. THE DEPARTMENT OF JUSTICE
CHAPTER 15. A DETAIL TO THE WHITE HOUSE
CHAPTER 16. MARRIAGE: A VERY GOOD INSTITUTION, FOR AN INSTITUTION
CHAPTER 17. SERVING SENATOR MCCAIN
CHAPTER 18. SEMIRETIREMENT: ESCAPE TO PARADISE (MIAMI BEACH)
CHAPTER 19. FROM RUSSIA WITH LOVE
CHAPTER 20. BEDLAM ON THE BEACH
CHAPTER 21. THE PROFESSOR
CHAPTER 22. AUTONOMY, INC.: THE RIGHT TO LIVE AND DIE
CHAPTER 23. THE FINAL TWO YEARS
CHAPTER 24. POSTSCRIPT: THE MEMORIAL SERVICE
ENDNOTES
APPENDIX A. TIMELINE
APPENDIX B. LESSONS LEARNED
APPENDIX C. UC RIVERSIDE COMMENCEMENT
APPENDIX D. WHITE HOUSE FELLOWSHIP APPLICATION ESSAY
APPENDIX E. RESURRECTING THE BULL MOOSE
APPENDIX F. LIFETIME CHECKLIST
APPENDIX G. CURRICULUM VITAE

 

To Purchase the Memoir

The soft cover book  is available through  Amazon.com, Barnes and Noble.com and Booklocker.com.

The e-book is available through:AMAZON: https://www.amazon.com/dp/B01FZHRZYQ BARNES & NOBLE: http://www.barnesandnoble.com/w/wisdom-from-a-chair-andrew-i-batavia/1123703998?ean=2940158508370 BOOKLOCKER: http://booklocker.com/books/8559.htmliTUNES: https://itunes.apple.com/us/book/wisdom-from-chair-thirty-years/id1116275433 KOBO:https://store.kobobooks.com/en-us/ebook/wisdom-from-a-chair-thirty-years-of-quadriplegia-the-memoirs-of-andrew-i-batavia

FREE excerpt available at:   Booklocker.com

Copyright © 2016 Andrew I. Batavia and Mitchell Batavia
ISBN: 978-1-63491-079-8
All rights reserved. No part of this publication may be reproduced,
stored in a retrieval system, or transmitted in any form or by any
means, electronic, mechanical, recording or otherwise, without the
prior written permission of the author.
Published by BookLocker.com, Inc., Bradenton, Florida, U.

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